16 Sep
PRES Congress
33rd European Paediatric Rheumatology Congress, Belgrade, Serbia. 16-19th Sept
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Dedicated to a better future for people diagnosed with vasculitis
UKIVas advances research, strengthens clinical understanding, and supports better outcomes for those affected by vasculitis.
Understanding our ambition
Learn about UKIVasA summary of the core areas of the work including active research, clinical collaboration and educational opportunities for those seeking to engage with UKIVas.
Align care
To unite and educate the professional community to improve the outcomes for patients of all ages living with vasculitis.
Collect data
To provide professionals working in the field of vasculitis with a rich source of data acquired through large scale collaborative working.
Advance collaborative research
To facilitate best practice and a positive environment that aids communication for this collection of rare diseases.
About UKIVas
UKIVas brings together leading clinicians, researchers, and partners to advance the understanding, diagnosis, and management of vasculitis. Through collaboration and shared expertise, we support progress that improves outcomes for patients across the UK.
Upcoming events
Discover all eventsUKIVAS events bring together clinicians, researchers, and collaborators to share knowledge and discuss advances in vasculitis care. These include educational courses, meetings, and conferences. Browse the events below to find out more and access further details.
22 Sep
7th EUVAS Vasculitis Course 2026
A three-day educational course covering vasculitis research, diagnosis and management.
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30 Sep
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From RAIRDA
🔎 In the UK we are looking at what NHS support is needed by people with #Sjögren’s, #Lupus, #Myositis #Vasculitis #Behçet’s & #Scleroderma please complete this survey
đź“‹ www.tinyurl.com/RAISE2025
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2025 BSR guidelines update
View all videosGuidelines update AAV – treatment – Dimitrios Chanouzas
UKIVas News
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Vasculitis UK: supporting patients every day
Vasculitis UK supports patients of all ages living with all forms of vasculitis, providing trusted information, a listening ear, and a community.
Building a pathway to clinical trials in IgA vasculitis
In February 2025, 53 experts from 13 countries convened at Alder Hey Children's NHS Foundation Trust in Liverpool for a multiprofessional international workshop focused on building a pathway to high-quality clinical trials in IgAV-N.
MHRA review of avacopan: what healthcare professionals need to know
On 5th June 2026, the MHRA announced a review of the benefits and risks of avacopan in ANCA-associated vasculitis (AAV)
FAQ's For Healthcare Professionals
- Healthcare professionals can contribute to studies, collaborate on projects, and join the UKIVAS network through their local centre.
- Patients can be referred through local research teams or study sites. Contact your local research department for details.
- Clinicians can contribute data through participating centres. Access the registry: https://ukivas.ndorms.ox.ac.uk/
- UKIVas contributes to national and international guidance and collaborates with EUVAS to support best practice.
Explore more ways to get involved
Discover further opportunities to support UKIVas, join research initiatives, contribute expertise, or engage with our community.
Contact UKIVas
Get in touch with our team for enquiries, collaboration opportunities, or support accessing information related to vasculitis research.